Week 39: We are not completely decorated for Christmas yet. We had a bit of a set back in that my son’s room had a slow leak in his window and it softened the wall board and warped the baseboards. Having a son with autism means he cannot let it go so he picked a GIANT hole in the wall. You could see the boards underneath!
We finally found someone who could remove the old boards, remove any mold underneath, fix the window inside and out then repaint his room. So we had to remove EVERYTHING in the room in 24 hours. His room is the place all things go to die. He hated having to sleep in the living room on the fold out couch for the past week. But, his room is finally done and we are slowly putting everything back into his room. All his furniture was in our room so that is going out piece by piece and we can start to decorate for Christmas. Our room is where our main tree sits.
He doesn’t understand that this was the best thing that could have happened. All the junk and papers are up off his floor and we can slowly go through things as we put them away. He loves his books and papers and has a hard time getting rid of anything. Last night we sat and went through close to 150 books. We made three piles – keep in his room, keep in other spaces, and books he no longer wants. I let him make the decisions but guided him through how he felt about each book and why he wanted to keep them or get rid of them. We still have lots more but we are moving forward thoughtfully. This is not easy for him and I understand.
We are asking my son to make lots of changes right now and it is tough for him all over. We have him using a new calendar system to work on his executive functioning skills. He really likes this one and I think we finally have one that may work once we get him to use it on his own. We are working on personal care and making him more independent of us. We are tying it to the calendar system to try and make it hands off from us. We are working hard trying to get him ready for college and life. Yes, we have been working on these things his whole life but when we look back at how far he has come from not even using eating utensils at 4 (though he could read and do math easily), to making friends in middle school, to now we see how much progress he really has made and it is amazing.